Pilot Grant Awardees

Cycle 1 Funded Projects

Six studies were selected from 71 applicants as the inaugural recipients of NDWS pilot grants. Projects started in Summer 2025.

Projects were chosen from a large pool of 71 applications from established and emerging researchers nationwide. Proposals were evaluated by a team of reviewers, including NDWS co-investigators and consultants, using NIH review criteria. Reviewers also considered alignment with the NIA AD+ADRD Research Implementation Milestones, which NDWS survey(s) would be used, the use of linked data, and the potential for subsequent funding.

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    Elyse Couch photograph

    Preparedness of Primary Care Clinicians for Alzheimer’s Disease Biomarker Testing

    Principal Investigator

    Assistant Professor, Health Services, Policy and Practice, School of Public Health, Brown University

    Co-Investigators: Emmanuelle Belanger, PhD, Associate Professor, Health Services, Policy and Practice, School of Public Health, Brown University; Jason Gantenberg, PhD, Research Scientist, Center for Evidence Synthesis in Health, School of Public Health, Brown University 

    This study will leverage the Community Clinician survey to better understand clinicians use of Alzheimer’s disease biomarker testing and disparities in test access. Investigators will explore how referrals for AD biomarkers vary by clinician- and practice-level attributes, including training, specialization, confidence in diagnosing dementia and MCI, number of patients served, and other factors. This work will lay the groundwork for tracking the use of biomarkers following Medicare's recent approval of amyloid therapies.

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    Fangli Geng photograph

    Enhancing Staff Retention in Dementia Care: Investigating the Impact of Modifiable Organizational Characteristics in Long-Term Care Settings

    Principal Investigator

    Assistant Professor, Health Services, Policy and Practice, School of Public Health, Brown University

    Co-Investigator: Pedro Gozalo, PhD, Professor, Health Services, Policy and Practice, School of Public Health, Brown University 

    This project will examine how organizational characteristics such as dementia care training, scheduling practices, and compensation impact both staff’s desire to stay in their job and if they do. It will identify which of these elements has the most significant impact on staff’s desire to stay and retention rates. Investigators will also explore how these relationships vary across staff roles including nurses, LPNs, and direct care workers, and how facility-level dementia census impacts staff retention. The study will use available linked data to consider facility-level characteristics, geographic context, and county-level unemployment rates.

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    Sung S. Park photograph

    Assessing the Contribution of Dementia-Related Training to Long-Term Care Workers' Well-Being and Intent to Stay

    Principal Investigator

    Assistant Professor, Gerontology, University of Massachusetts Boston

    Co-Investigators: Pamela Nadash, PhD, Associate Professor, University of Massachusetts Boston; Edward A. Miller, PhD, Professor, University of Massachusetts Boston

    This study will explore variation in the dementia-related training of the long-term care workforce. It will also examine how this training impacts worker well-being and intent to stay using three well-being measures: physical well-being, psychological well-being, and the degree of self-efficacy to perform dementia-specific job tasks. Researchers will also explore how dementia-specific training relates to workers’ exposures to job hazards.

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    Identifying Training and Knowledge Gaps in the Dementia Care Workforce Across Care Settings: A National Overview

    Principal Investigator

    Associate Professor, Kent School of Social Work and Family Science, University of Louisville

    Co-Investigator: Heehyul Moon, PhD, Associate Professor, Kent School of Social Work and Family Science, University of Louisville

    This project will investigate the extent to which informal and formal training is associated with dementia care attitudes and practices across long-term care settings, controlling for demographic factors and work-related characteristics. The investigators hope that this research can be used to identify appropriate and cost-effective training strategies to increase job satisfaction, reduce turnover, and enhance the quality of dementia care provided, especially in underserved and socioeconomically disadvantaged communities. 

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    Nancy Schoenborn photograph

    Clinician and Practice Factors Associated with Polypharmacy and Inappropriate Medication Prescribing Among People Living with Dementia

    Principal Investigator

    Associate Professor of Medicine, Johns Hopkins University

    Co-Investigator: Ariel Green, MD, PhD, MPH, Associate Professor of Medicine, Johns Hopkins University

    Biostatistician: Vishaldeep Kaur Sekhon, MPH, Senior Biostatistician, Center on Aging and Health, Johns Hopkins University

    This study will examine community clinicians’ beliefs and attitudes regarding deprescribing medications and use of psychotropic potentially inappropriate medications (PIMs) in patients living with dementia. The study team will identify patient, clinician, and practice-related factors that predict favorable beliefs and attitudes. They will use prescribing data to study predictors of prescribing more than five medications and prescribing psychotropic PIMs. Through this research, they hope to identify new intervention targets and strategies for reducing polypharmacy and PIMs in people living with dementia.

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    Denise Tyler photograph

    Nursing Home Staff Dementia Attitudes, Facility Culture, and Staff Turnover

    Principal Investigator

    Research Scientist, Scripps Gerontology Center, Miami University

    Co-Investigators: Amy Elliott, PhD, Senior Research Scholar, Scripps Gerontology Center, Miami University; Heather Menne, PhD, Associate Professor, Department of Sociology & Gerontology, Miami University

    This team will examine the relationship between the dementia knowledge and attitudes of nursing home staff and staff turnover, and how both are impacted by facility culture. Previous research has shown that the ability of nursing home staff to turn training into practice is related to the facility’s organizational culture, such as supervisory support and staff empowerment. As part of this work, investigators will develop a composite measure of facility culture and use linked data to examine how culture impacts staff turnover.

Cycle 2 Funded Projects

The five Cycle 2 recipients will make innovative use of the NDWS data and contribute valuable insights to address critical gaps in current dementia workforce research. Studies will begin in October 2025 and be conducted in 12 or 18 months.

Projects were chosen from a diverse pool of 68 applications from established and emerging researchers nationwide. Proposals were evaluated by a team of reviewers, including NDWS co-investigators and consultants, using NIH review criteria. Reviewers also considered alignment with the NIA AD+ADRD Research Implementation Milestones, which NDWS survey(s) would be used, the use of linked data, and the potential for subsequent funding.

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    Alexander Chaitoff photograph

    Identification of Provider-Level Factors Associated with High-Risk Medication Use Among the Population of Older Adults Living with Dementia

    Principal Investigator

    Assistant Professor of Internal Medicine, University of Michigan, Medical School

    Co-Investigators: Matthew A. Davis, PhD, MPH, Associate Professor, University of Michigan, School of Nursing; Hyungjin (Myra) Kim, ScD, MA, Research Scientist, University of Michigan, School of Public Health

    People living with dementia are prescribed medications at a rate nearly three times higher than their cognitively healthy counterparts. This includes both high-risk psychoactive (e.g., antipsychotics) and non-psychoactive medications. This study will identify provider and practice characteristics associated with high-risk prescribing and determine whether prescribing rates of high-risk psychoactive and non-psychoactive medications are correlated and influenced by the same characteristics. The goal is for this research to inform the development of tailored and targeted Academic Detailing-based interventions that employ interactive education to reduce high-risk prescribing practices among PCPs caring for PLWD. 

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    Erica Frechman photograph

    Advance Practice Providers and Dementia Care: Role of Training, Preparedness, and Practice Setting for Patient Outcomes

    Principal Investigator

    Assistant Professor, Gerontology and Geriatrics, Wake Forest University, School of Medicine

    Co-Investigators: Amresh Hanchate, PhD, Professor, Social Sciences and Health Policy, Wake Forest University, School of Medicine; Jennifer Gabbard, MD, Associate Professor, Gerontology and Geriatrics, Wake Forest University, School of Medicine; Lindsey Abdelfattah, MS, Data Analyst; Wake Forest University, School of Medicine

    Advanced Practice Providers are increasingly important in dementia care delivery, yet their contributions to this care are underrecognized and understudied. This study will leverage the Community Clinician survey and CMS claims data to examine APPs and how their dementia-specific training, preparedness, and practice settings are associated with meaningful variation in care quality and outcomes for people living with dementia. 

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    Ashwin Kotwal photograph

    Grief Support in Dementia Care: The Prevalence, Determinants and Impact on Staff Well-Being Across Care Settings

    Principal Investigator

    Associate Professor, University of California, San Francisco, School of Medicine

    Co-Investigator: Alexander Smith, MD, MS, MPH, Professor of Medicine, University of California, San Francisco, School of Medicine

    Senior Statistician: Irena Cenzer, PhD,  Senior Statistical Scientist, University of California, San Francisco, School of Medicine

    This will be the first national study of grief support in the dementia care workforce across multiple settings, including nursing homes and assisted living communities. Staff frequently experience the death of patients, yet little is known about bereavement. The team will examine the experiences, determinants, and effects of grief support (or a lack thereof) on well-being. They will also analyze variation in grief support across staff features, such as roles, training, and demographics, to identify where grief supports are most needed and how they may influence workforce stability.

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    Cliff Whetung photograph

    Factors Associated with Dementia Care Worker's Job Satisfaction, Burnout, and Retention Across the Rural-Urban Continuum: Findings from the National Dementia Workforce Study

    Principal Investigator

    Assistant Professor, University of Minnesota Duluth, Medical School

    Co-Investigators: Kristen Jacklin, PhD, Professor, University of Minnesota Duluth, Medical School; Stephen Waring, DVM, PhD, Principal Scientist, Essentia Health & Essentia Institute for Rural Health, University of Minnesota Duluth; Emily Onello, MD, Associate Professor, University of Minnesota Duluth, Medical School

    Rural communities face unique challenges in delivering dementia care. This project will examine the characteristics of the dementia care workforce across the rural-urban continuum and associations between rurality and direct care worker job satisfaction, burnout, and retention levels. The findings of this study will inform strategies for improving direct care worker experiences in high-risk rural communities.

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    Hanzhang Xu photograph

    Overcoming Barriers to Comprehensive Dementia Care: Provider Perspectives Across Socioeconomic Contexts

    Principal Investigator

    Associate Professor, Duke University, School of Nursing

    Co-Investigators: Matthew E. Dupre, PhD, Professor, Population Health Sciences, Duke University; Eleanor S. McConnell, PhD, RN, Associate Professor, Duke University, School of Nursing

    This study will use the Community Clinician survey to assess how provider-reported barriers impact the provision of comprehensive dementia care. The team will also determine whether the associations between provider-reported barriers and comprehensive dementia care delivery differ by area-level socioeconomic disadvantage.